Broken Arrow man fighting to get congress to approve easier access to ALS treatment

Broken Arrow man seeks executive order for easier access to ALS treatment

BROKEN ARROW, Okla. — A Broken Arrow man living with ALS is asking for an Executive Order from President Trump to grant easier access to treatment not yet FDA approved but already showing success.

Last year, FOX23 introduced you to Mike Henson who started a petition to Right to Try access for a certain treatment. Legendary Jenks High School Football Coach Allan Trimble joined his fight. The company behind the treatment denied their request. Sadly, Coach Trimble died from ALS in December 2019.

Related Story: Legendary Jenks coach dies after battle with ALS

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Now, Henson and Mark Bedwell are wanting an executive order for patients to receive a stem cell treatment that in some patients like Bedwell has reversed their ALS symptoms. They’re also encouraging people to contact their members of Congress to pass the “ALS Placebo No More Act” so patients with ALS could receive the medication or real treatment in a clinical trial and not a placebo since ALS is a terminal illness.