Bartlesville family shares son’s rare diagnosis, searching for answers

BARTLESVILLE, Okla. — A Bartlesville family’s life has been turned upside down by a mysterious, paralyzing diagnosis for one child.

It was a normal night for Morgan Baker and her five kids. They had pizza and ice cream for dinner when her oldest son Connor started throwing up. He stayed home from school the next day, but this was no normal stomach bug. In a matter of 24 hours, he could barely move.

After a myriad of tests, doctors were able to diagnose Connor with a stroke. After, he was given a different diagnosis: Acute Disseminated Encephalomyelitis. This is an inflammation in his spine and brain.

Currently, Connor is at Oklahoma University Children’s Hospital paralyzed from the shoulders down.

It’s not clear what caused Connor’s illness, and it is an extremely rare diagnosis at his age. Presently, there is no known cure, and the family’s only hope is that after extended periods in rehab, he could potentially regain some function.

However, there is no guarantee.

Connor should be moved to a long-term care facility. Right now, his mother, stepfather and four siblings live over two hours the hospital. Baker said that after weeks off from work, she can now only see Connor on weekends.

The family told FOX23 that their hope is that someone will hear Connor’s story and share helpful information on treatment.

There are different ways to donate to help Connor and his family. You can do so at the following websites: