Morgellons: A medical mystery

Tulsa researcher is trying to pinpoint the cause of a disease some say doesn't even exist.

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researcher - 12/10/2012 11:39 PM
0 Votes
You see alot of blogs about invisible bugs too that look like specs of pepper or white the size of sea salt or slightly larger that shake out of clothing. You feel a bite or sting and pest control companies cannot figure it out. Sounds like a mite to me. Is this different than what you are speaking about? The mite does bite and by vacumming and cleaning bedding bites can be kept to a minimum (from 24 bites in one night to a couple every other day) - people experience the crawling and the only evidence is the light black pepper pieces and sometimes very light short hair like fibers - under a microscope that may not be that good they appear to be possibly a bug wrapped in fibers. Not sure what this is? Any comments? There has been research on mold spores and black mites invisible to the eye. There are products like Kleen Green that are helping people - not sure if they completely eliminated the bug....

Homeworld - 2/29/2012 5:01 PM
0 Votes
So, the CDC declares that those with lesions and fibers growing in the skin are doing this to themselves to "get attention". I see. Most of the fibers are absurdly thin..~20 micron dia, 1/4 the thickness of a normal hair. Where are the crazy folks harvesting their fibers to implant? How is it that so many crazy people can find the exact same [usually transparent] and nearly microscopically thin fibers? Many fibers are found growing horizontally just under the top layer of skin cells..how do the crazies manage that without breaking the skin? Why are all those lesions [made by crazy folks clawing at their skin] not horribly infected? If not infected, why do the lesions not heal? Why are the lesions often filled with something that looks much more like plastic than skin? Why do those plastic scabs grow what look like roots; often several of them? Why is it that the really thin transparent fibers combed from the scalp do not dissolve like hair does when bleach is applied? How are thousands of near microscopic fibers embedded into the scalp? Where do the "morgies" get the time and skills to do that? The truth of the matter is that the CDC study has been a fraud from the start. The dermatologists are declaring the "morg" afflicted as "crazy people" without doing the required clinical testing to rule out other possible sources. More often than not, a derm will simply glance at the skin and suggest a visit with a "mental health professional. Really? Without using so much as an inexpensive magnifying glass? [never mind a microscope] Why the intense focus on only skin issues? So many "doctors"..and nearly none of them can be bothered to take a close look at what is in plain view. The "CDC brush off" is so much quicker and easier and far more profitable. This is not medicine. This is quackery. ..sad to see the "doctor" profession degrade to being like a cab driver; they don't care where you end up, just so long as the meter is fed every 12 minutes.

Becky Bailey - 2/29/2012 6:34 AM
0 Votes
The real mystery is how most all doctors have been TAUGHT to ignore our symptoms, while there are so very many skin parasites and other conditions that cause itching and lesions. They send us to shrinks without any testing. How can we not be paranoid? Then this joke of a study from the CDC comes out, doing their best to discredit our suffering. Why didn't they consult with the few researchers who do believe us? Thank God we do have some validation! Without these persistent heros, we would be sunk. I'm sending a check today, small as it may be!

pestilent1 - 2/29/2012 5:27 AM
0 Votes
Carolyn51 Two of my friends claimed to have morgellons, theyve been married 20 years 15 of it with morgellons. I didnt believe them at first. It took me 5 years to catch their delusions. and yes it sucks. Imagine if The CDC would have found something how long it would have been late to "compile" the results...what a joke they are.*

Carolyn51 - 2/28/2012 10:24 PM
1 Vote
I challenge any reporter of this or any news channel to locate and interview just one person from this so called CDC study. Where are these people? Why have none of these patients spoken out about where the study actually took place. How about some first hand info from the patients actually involved in this fake study! We have heard from the CDC. It took Almost three years after the completed study just to say they found nothing other than the patients were delusional. They first said they had to consider the stakeholders???? Who are the stakeholders?????? Did these participants actually have symptoms of morgellons? For those of us who are actually suffering physically, emotionally, and financially from this deserve better answers. WE DESERVE BETTER!!!!!!!!!!!!!!

watchdog11 - 2/28/2012 9:33 PM
0 Votes
My son has been studying this disease for several years,he has found some photos of actual fibers in the flesh of sufferers,some in places no one could reach to sew any threads into even if they wanted to do something nuts like that. I personally believe it is a true disease, probably environmentally created, the reason the CDC is disputing and ridiculing these claime could be that they probably know what is causing it, most likely linked to some innoculation required by the gov. In the past few years there has been some pretty strange liquids and gels found in yards and pastures that no one would admit any knowledge of, I'm not saying we are being experimented on, but I wouldn't put it past our gov., it has happened before.

Linda Sue - 2/28/2012 5:09 PM
1 Vote
If you need help and support visit http://morgellons-sanctum.com/forum/index.php, an online networking community providing hope, healing and support for Morgellons and Lyme Disease sufferers. This is a private forum that is peaceful and balanced.

Frank C - 2/28/2012 2:25 PM
0 Votes
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ironjustice - 2/28/2012 7:39 AM
0 Votes
Polycythemia is accompanied by an 'itch' and a cursory search on the web brings up this. "I have a condition called polycythemia vera along with morgellons, and I've always wondered if others have this but do not know it."

Carolyn51 - 2/28/2012 2:29 AM
0 Votes
My husband, daughter in law, father, and step mother have all witnessed the awful symptoms I have. They have seen first hand things on and from my skin and hair. Does the CDC report also have a medical term for how so many of us have been able to transfer our so called delusion over to our non morgellons family and friends? So we are all world wide suffering the same delusion, and if this is true then what is it in our environment that in the past ten years has caused us to all suffer from the same delusions? Many times I have asked someone to look at something on or in my skin. I don't tell them what I see, I ask them to describe what they see and mostly they describe exactly what I see. Does that make their delusion the same as mine but they just happen to be free from the morgellons symptom? The CDC report has too many holes in it and doesn't hold water'!!!!!!!!!
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